LINKS

This page contains a collection of useful UK-based links on APD and disability support for children and adults.

CONTACT: apd.support.uk@aol.co.uk

DISABILITY SUPPORT FOR FAMILIES AND INDIVIDUALS

These websites are "APD-aware" and provide general disability support and/or information, although not specifically for those with APD. But APD never exists alone and can coexist with any number and variety of other conditions, disabilities, or difficulties which also need support.

N.B. If your organisation is APD-aware and shares information on APD or provides support for those affected by APD, please email apd.support.uk@aol.co.uk to be added here.

The Brain Charity: A charity that supports those affected by all types of neurological conditions.

SupportLine: Confidential emotional support to children, young adults and adults by telephone, email and post.

Communication Matters:Supporting those who struggle to communicate.

Contact: A charity that supports families of disabled children.

Special Needs Jungle: Providing parent-led information, resources and informed opinion about children and young people 0-25.

Anridia Network are a charity that supports people with rare genetic condition Aniridia in UK and Ireland. Aniridia causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. The PAX6 gene that often causes Aniridia has also been linked to APD

EDUCATION

Special Educational Needs and Disability Code of Practice 

UK Local Authorities/LAs: A list of contacts for the LAs in England, Scotland, Wales, and Northern Ireland.

English LAs: A list of contacts for the LAs in England.

Welsh LAs: A list of contacts for the LAs in Wales

ADVOCACY AND FREE LEGAL ADVICE ON EDUCATION

IPSEA - Independent Parental Special Needs Advice

SOSSEN - Supporting children and young people with special educational needs and disabilities
 
CORAM -
Children's Legal Centre

ICO - Information Commissioner's Office: accessing your child's school records

How to complain to the NHS  The information on this page will guide you through the NHS complaints arrangements, as well as the core requirements for NHS complaints handling laid out in legislation.

SOME UNRELATED CONDITIONS 

Some of the more common conditions that might co-exist with APD

Visual and Auditory Processing Disorder

*Visual Processing Disorder is diagnosed by a Behavioural Optometrist. In some areas this service is provided on the NHS or via schools, but in others it is only available privately. You can locate a local provider here.

The National Autistic Society

ADDitude - support for ADD/ADHD

Scotopic Sensitivity Syndrome

Sensory Processing Disorder Symptoms

Hyperacusis

Vestibular Hyperacusis

Dyspraxia Foundation

Developmental Co-ordination Disorder/DCD (formerly Dyspraxia)

"Welcome to Holland" by Emily Perl Kingsley - an article for parents of a child with a disability or SEN.This is also relevant to to those whose child is gifted, which is also an additional need.

Executive Function Problems: The image below shows examples of how executive functioning problems can affect organisation and planning skills in daily life

Executive Functioning.pdf Executive Functioning.pdf
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DUAL EXCEPTIONALITIES/2E (Gifted with Learning Difficulties)

Article - 'I Think in Pictures, You teach in words - The Gifted Visual Spatial Learner' by Lesley Sword

'Dual/2e' - definition and additional links

DISABILITY BENEFITS

APD can meets the criteria of a disability in the UK in many people, depending on severity and coexisting conditions.

DWP - Disability benefits: Benefits and financial support if you're disabled or have a health condition.

Citizen's Advice: Benefits support

LINKS SPECIFIC TO WALES  - CYSYLLTIADAU PERTHNASOL I GYMRU

Special Needs Jungle ALN/SEN reform  - new guidance for Wales on the new "rights-based" learning system

Learning Wales/Dysgu Cymru

Disability Advice Project

APD BOOKS, BLOGS AND ARTICLES

Please see the Books/Blogs page

"Can I tell you about" series by Jessica Kingsley Publishers - a range of books for children on a variety of conditions